A group working together around a table, sharing ideas with notes and drawings.

How we built Know Me

Know Me was co-designed with people with lived experience and NHS staff, who helped decide which questions to ask and how to present the answers.

See what changed

We developed Know Me in partnership with Leeds Teaching Hospitals NHS Trust, where the passport is now in use.

Co-designed from the start

People reviewed the passport multiple times in South London and Leeds. We revised the wording, questions and layout after each round.

What changed

Questions that are easier to follow

Communication questions sit together, and required fields are marked beside the question.

Space to explain what helps

People can describe why they need a longer appointment, a quieter space or support with medicines.

More everyday care needs

The form includes eating and drinking, oral hygiene, sensory needs and support with medical procedures.

What NHS staff needed to know

Clinical teams in London and Leeds reviewed the passport over several rounds. They focused on information they need during care: how a person communicates, what support helps and which adjustments to make.

The one-page summary gives staff a place to find those details before an appointment or hospital stay.

From passport answers to SNOMED CT codes

A flag tells staff a person needs adjustments. The code tells them which one. Know Me suggests the SNOMED CT code that matches each adjustment in the passport.

Participating NHS teams get a short coding summary with each shared passport. Every suggestion shows the person's own answer, so staff can check it fits before adding it to the record.

Illustration of clinical codes linked to a health record.

Examples from the passport

Longer appointments
Requires extended appointment
SNOMED CT 1108171000000102
A quieter waiting area
Requires low noise environment
SNOMED CT 1325391000000106

Every code comes from the NHS list. View the NHS adjustment code list

Know Me only suggests the codes. NHS teams review each one and update the Reasonable Adjustment Digital Flag in their own systems.

Make your passport

Tell staff what you need before your next appointment. You can print your passport or email it to the people involved in your care.

How we protect your information

Read how your information is stored and shared, and how long we keep it.

Read our privacy policy